Carter is 10 years old. He's a big brother, avid baseball player, adventurer seeker and all-around sweet boy.
Up until the Fall of 2021, Carter has lived a very normal life. In August 2021 it was discovered that Carter has Severe Aplastic Anemia (AA), a very rare form of blood marrow failure.
"We will never forget the moment the doctors told us that our son has this rare disease impacting his bone marrow and blood. We will never forget the moment that our once “normal” and healthy family began the journey that will change us forever."
Carter and his parents went to Boston in search of answers at Boston Children’s Hospital. In Boston, Carter underwent weeks of testing. His family has learned the ins and outs of bone marrow failure and what the treatment options are for the particular types of bone marrow failure. While the initial diagnosis is AA, we are still in an uncertain area of bone marrow failure. Carter’s peripheral blood samples show levels in line with the severe AA diagnosis; however, after two biopsies, his marrow is not behaving like the marrow of an aplastic anemia patient. This unknown area puts Carter in a watch, wait, test and see situation.
Time is important as it allows doctors to monitor Carter’s marrow via repeat biopsies to determine if changes are occurring and leading us down the different paths to a firm diagnosis and treatment plan. Time is also important because Carter’s blood levels need to be watched closely since he has become transfusion dependent.
During the time spent with doctors in Atlanta and in Boston, one thing has remained the same. A bone marrow transplant is the only true cure for bone marrow failure. Since this topic has been discussed with us numerous times, a search of the world-wide donor database has been conducted and Carter’s brothers have been tested. Carter does NOT have a fully matched donor.
"We will be the first to admit that until two months ago, bone marrow failure didn’t particularly mean much to our family. Unfortunately, before this time in our lives, we would have most likely skimmed by a flyer or a social media post without acting on it. Like anything, it is easy to do when something doesn’t directly impact you or someone you know and love. Today, our view on this has drastically changed and so have our hearts when it comes to donating. We now know how extremely important it can be to take the steps to becoming a donor.
We are asking you to consider what bone marrow failure means to a family experiencing it and help in any way you feel comfortable. Our family needs help in our search to find a match for Carter’s potential transplant. He needs YOU, we need YOU and we know with your help, anything is possible."
The outpouring of support and love from family and friends, near and far, has been overwhelming and is appreciated more than we can express. Until recently, we have not had an answer for how you can personally help through this trying time. We do now.
We need YOU to register to donate.
We need YOU to encourage your friends and family to register to donate.
We need YOU to help us spread the word.
You could be the ONE to help our son, Carter, get back to living his life like a ten year old boy should.
Please consider registering for Be the Match by texting Cure4Carter to 61474, using the website below or by the QR code. Registering is quick, easy, painless and at no cost to the donor.