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  • Writer's pictureLyndsay

Step Up to the Plate & Be Swabbed

Updated: Jul 7, 2022

Our family went to Boston in search of answers at Boston Children’s Hospital. In Boston, Carter underwent weeks of testing. We have learned the ins and outs of bone marrow failure and what the treatment options are for the particular types of bone marrow failure. Though we went to Boston with an initial diagnosis of AA, we are now in an uncertain area of bone marrow failure. Carter’s peripheral blood samples show levels in line with the severe AA diagnosis; however, after two biopsies, his marrow is not behaving like the marrow of an aplastic anemia patient. This unknown area puts Carter in a watch, wait, test and see situation. Time is important as it allows us to monitor Carter’s marrow via repeat biopsies to determine if changes are occurring and leading us down the different paths to a firm diagnosis and treatment plan. Time is also important because Carter’s blood levels need to be watched closely since he has become transfusion dependent.

We will be the first to admit that until two months ago, bone marrow failure didn’t particularly mean much to our family. Unfortunately, before this time in our lives, we would have most likely skimmed by a flyer or a social media post without acting on it. Like anything, it is easy to do when something doesn’t directly impact you or someone you know and love. Today, our view on this has drastically changed and so have our hearts when it comes to donating. We now know how extremely important it can be to take the steps to becoming a donor. We are asking you to consider what bone marrow failure means to a family experiencing it and help in any way you feel comfortable. Our family needs help in our search to find a match for Carter’s potential transplant. He needs YOU, we need YOU and we know with your help, anything is possible.



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